At four years old, socially, Sidney was your typical little boy. He had friends. Lots of friends. Everyone was his friend. He loved everyone. And actually this hasn’t changed much except as his friends matured Sidney didn’t. His friendship circle became smaller and smaller. I tried to keep him in different activities. Again, he was just too immature to keep up with his peers.
There was one organization where both the boys and their parents embraced Sidney. The Boy Scouts became our lifeline for socialization. I remember when he was going from a Cub Scout, where parents are heavily involved, to Boy Scouts, the scout master telling me eventually you won’t be going on these camp outs. The older scouts will take care of him. I’m thinking yeah okay. But it did happen. Let me be clear, I have gone on my fair share of campouts, including a couple of week long WINTER camps. So this girly girl was ecstatic when campouts were no longer on her agenda 🤣
Today I’m Thankful for the Boyscouts. But most importantly pack 1188 and Troop 3. Especially the parents. People your kids are a representation of you. If you are kind and accepting, most likely your child will be too. It’s just that simple.
Final day of November. Though Epilepsy Awareness Month officially ends today, doesn’t mean we get to “shelve” it until next year. For many, epilepsy is a reality EVERYDAY (seizures, medicines, diets, delays, therapies).
For me, besides my support groups, the one thing that kept me sane through those hard years was CRAFTING. I first started with making scrapbooks of Sidney. It was my true happy place. From there I began making Christmas cards (and every other holiday) and on to treat boxes for Sidney’s teachers and my coworkers. Again, I thank them for humoring me all of those years. Every holiday, every occasion ( oh someone’s getting married, having a baby. I’ll do the decorations. Lol), I volunteered (more like showed up with) diaper cakes, treat boxes, favor bags, decorations 😜.
It may sound crazy, but I’ve made some lifelong really good friends through my craft groups. Some of these women, I’ve never met in person. So now you know why I have so many friends on Facebook 😍😘
Either all of that therapy really helped or I’m just in a happier place in my life. I seldom craft now. I’ll make shirts here and there. Nothing like before. But from time to time, I have to go make something just to get ME back.
Sidney and I have been Blessed by so many people during this journey. There’s not enough words to express our heartfelt thanks. Those of you who have been there from the beginning, those who came along the way and those just finding out about our journey THANK YOU 😘😘
I want to thank two people that I just picked up the phone and said I need you. They dropped everything and came. My sister/Friend Wendy Campbell Robinson took a train, left her husband and two small girls to come stay at the hospital with us. My cousin Kay who caught a flight to Houston only to almost take her first ambulance ride to the hospital (no matter how much we begged, they wouldn’t let her ride with us). My wonderful neighbors had to bring her to the hospital). Those early days were full of LONG hospital stays.
I want to thank my family. I could not have done it without them. Trips to Maryland four times a year, specialty food, medicine, therapy, doctor and hospital bills are not cheap. Uncle George (no one else is on Facebook). Thanks
Thank You John O LaVergne Jr. for realizing I was a package deal, Accepting the challenge, stepping up and being the MAN we needed. We Love You 😘
Last, I want to thank God Without my faith, Sidney and I would never have made it this far.
This is our Life Story. Our Journey.